First LDS Patient and Research Networking Conference

June 24th / 25th 2023

Registration form for research program of the First LDS Patient and Research Networking Conference. June 25

105 places left


Registration Deadline: May 25th 2023
Registration information:
The research program is intended for clinicians and researchers according to the world café format.
The registration for the research program on June 25th is 50 Euro. Lunch, beverages and snacks will be provided throughout the day.
The research program on June 25th is preceded by an optional conference dinner on June 24th, 7 pm in Hof Van Liere for 65 Euro.
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Registration Details:
I WILL ATTEND THE RESEARCH PROGRAM on JUNE 25th (50 Euro) OF THE FIRST LDS PATIENT AND RESEARCH NETWORKING CONFERENCE
I WILL ALSO ATTEND THE EDUCATIONAL PROGRAM on JUNE 24th (free) OF THE FIRST LDS PATIENT AND RESEARCH NETWORKING CONFERENCE
I WILL ATTEND THE OPTIONAL CONFERENCE DINNER on JUNE 24th- 7 pm (65 Euro)
Food allergies:
I would like to request physical assistance.
(wheelchair users, etc.)
Preferences for parallel brainstorm sessions on June 25th
Please choose 1 parallel session topic for the morning and 1 for the afternoon.
For more info, see programme on main page.
Morning: 8:30-10:00
Which model systems are lacking in LDS research?
Aline Verstraeten (basic science, Antwerp) – Judith Verhagen (clin genetics, Rotterdam)
How to build the best international registries, database?
Ingrid van de Laar (clin genetics, Rotterdam) – Julie Richer (clin genetics, Ottawa)
Update of the 2014 clinical management paper?
Gretchen Oswald (genetic counselor, Baltimore) – Alice Krebsova (cardio/genetics, Prague)
Afternoon: 13:30-15:00
Which strategies should we follow to identify new therapeutic targets/new biomarkers?
Sanjay Sinha (Cambridge) – Albert Pedroza (cardiac surgery, Stanford)
How could a clinical trial look like?
Alex Pitcher (cardiology, Oxford), Jim Black (vascular, Baltimore)
What are unmet clinical needs?
Pam/Tony Guerrerio (immunology/internal medicine, Baltimore)



Unfortunetly, the registration deadline has been reached. If you would still like to apply, please also send an email to maaike.alaerts@uantwerpen.be

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